Sunday, December 7, 2008

The Week Ahead

So many of yo have asked what is next....so I am going to post here. Cause you know I love to post. But really maybe it would be good to have it posted somewhere..so I can keep track.
But most important ...so all my faithful friends can know when to pray...I can so feel the prayers.

Monday AM...I will be seeing the surgeon. This was scheduled for later in the day but it was decided after some other test to move up the appt. I will be having a biopsy. And going over the mapping scan I had done.

Monday afternoon....Philip has his long awaited muscle test and biopsy. This is very important.

Tuesday...Philip will see the specialist to go over all his MRI's. We will be getting some answers. And I will be honest and say...I am not sure what to hope for. The truth is NONE of them seem good. But please pray that the path is clear for us. A plan would be nice. And of course Miracles are always wanted...so badly.

Wednesday...Surgery to remove the two masses...although we know from the scan there are three or more. But I will be having the operation . According to the DR the recovery is severe. For three weeks there is NOTHING I can do. I said...are you serious. She was being so strict with what she said I half way thought she was being cute. But she is serious. The place that the masses are is in a scary place. Being so close to my throat and windpipe, I have to be extra careful. So I will do just as she says. Then for 3 months afterwards I will need to be very careful with what I do. Long recovery. But well worth it ...if I can heal healthy from this operation.

Things I am waiting for...

Monday...I should hear from the Cancer DR . He will address the follow up for the lump found in the breast. And more important the nodules found on the chest/ lung area. These were found by accident when doing the MRI of the neck. I know from the Radiologist I will need a full PET scan done ASAP. I am sure the Cancer DR will know what to do.
And he may have some of my blood work back...that would be good.

Also wanted to add...

Philip did have his three MRI's Friday. He was pulling in with my FIL and I was leaving the center. The scan was hard because he has no good veins left. I am pretty sure if he needs more testing and operations..we will opt to have the central line put back in...
His shunt was re set.
His pain is still as bad. On meds and patches. The thing that worries me among other things is..this issue has now gone down into his left leg. When we last saw the specialist he did have the new weakness in that leg along with his left arm..but not the pain in the leg...So it will be good to know what we need to do.
Being that he has no use out of his right arm and hand...we are very worried about losing function in his left side.

Thanks for letting me share with you...I know it seems like a lot to take in..and well it is.

But with all of you praying and supporting us..I know God will bless us..He always does.

7 comments:

Stacy C. said...

Youa are such a strong woman. You have so much going on in your life. I will continue to pray for you and your family!

Heather said...

Amy,
If anyone can make it through this week ahead, it is YOU. You have more strength and compassion than any other woman I know. Please know that you and your family are in our prayers, always.

Keli said...

Girl, you are one strong lady! You will make it through this, I just know it! I'm praying every day for you, Philip and your family! xo Keli

Amy Dungan (Sparky's Girl) said...

Hi Amy, I'm new to your blog, but I just wanted to let you know we are praying for you here as well. I can only imagine the strength God is giving you to get through so much. I'll be back often watch for the miracles you are looking for. :)

JANE said...

You really sound like you are doing better, mind wise. I think writing it out and mapping out the course of action for this week does you good. I so hope things are able to go well for Phillip.
I know as strong as you are and facing it head-on, your medical issues will be taken care of in the best way. It will be a busy progressive week, keep strong and I'll pray for strength for you, healing for both of you and wisdom for the doctors!

Davisix said...

I don't know how you keep up! I will not complain about ANYTHING, not when you are going through so much. You inspire me, and I mean that! Hugs and lots of prayers!!!! Love you, Ang

hannahmade soaps said...

Amy, as I read your latest post and hopped over to read Phillip's story I was overwhelmed. I have a daughter that was born just a few weeks before Phillip. I also read about looking for a miracle. I dont' believe in coincidences. I should have been in bed hours ago. I was reading twitter friend blogs, and ended up here. This whole blogger thing is relatively new to me. I have been blogging at http://luvmy12kids.blogspot.com for a while, but mostly just to connect with family, not to make a difference in the world.
All this to say... I may not have a miracle, but I know of something that might help if you are interested. Ten years ago I buried a son. God has used this loss in my life to fill me with a passion for helping others. Before you respond, pray about it. This might not be God's answer for you and your family. If you feel led to learn more, I'd be honored to share. Please email me as my days are full and I don't always get to spend as much time as I'd like reading blogs. I am praying for you now, and will continue to. I am following your blog, so I will check in.

Dee Dee, Hannah's mom