Thursday, May 28, 2009

We Get It Done...

We get It Done...There have been many days that I have dropped Emily off at school and not been able to pick her up because we have been away dealing with a emergency for Philip ....There have even been times I have dropped her off and she has come home to find that I have had to leave in a emergency to a out of town hospital and be away for weeks at a time while Philip had back to back brain operations and stayed in ICU for weeks. Lately I have had days where I have not been able to drive her to school or pick her up with healing from my operations or treatments. And yet...we just do what we need to get it done..

Our motto this year has been...We may not do it pretty ..But we get it done..
Last night my beautiful daughter showed what that means. She took things one day at a time..and she made it through a very hard school year...We are so proud of her .
Graduation 2009

Wednesday, May 27, 2009

Welcome To The World ..

Welcome to the World Jackson nephew.
Born This Morning at 2 am to my beautiful sister and Derek. 8 pounds 14 ounces 20 inches long...isn't he beautiful..GOD IS GOOD.

Monday, May 25, 2009

Such A Blessing....

Tomorrow is going to be such a important day....I am going to be a New Aunt...My baby sister is going into the hospital to be induced ...he is expecting her first baby. Jackson Gray ...

I am so very excited about my nephew. Our side of the family is very small...Me, my mom, and my I am sure you can imagine this is a BIG DEAL.

The thought of being a new aunt has gotten me through some kind of dark days...and now finally he is going to be here. Not a day too soon.

So you all can just call me Aunt Amy

Friday, May 22, 2009

Warning Boy Parts talked about PG13

Since so many of you come here to support me as a mom on the harder days...I just thought you all NEEDED to know that while my days lately have been filled with many tears...they also are filled with wonderful memories like this. I laughed so hard tears rolled down my face...and they were long overdue happy tears...

Last night after a VERY long hard day...Cole sneezed really hard...he looks at me as serious as can be..and said I sneezed so hard my penis almost fell off my balls. I snapped my head around at him and said Cole Tre you can NOT say things like that. He said why not? I said because one..that is not a nice thing to say and second that can not happen.

As serious as can be..he looks at me and says..Mommy how do you do NOT have a penis or balls you have Ginny..

He stares at me ..I stare at him...and tick tock..what am I to say...

Okay Cole Tre...but do not say that again. Okay mommy ..but I hope I do not sneeze again..

Monday, May 18, 2009

Some moments before Surgery Pictures..

Before Surgery Pictures.

To be honest I am a tad worn out and emotionally worn down. I am working on a medical update but for some reason my heart is heavy and the post is just happening. But it will. ..
I thought I would go ahead and finish posting some before pictures of Philip's operation.
Here are the First Set

I am telling Philip that since there is a issue with "central line" I can find a vein..and I go to show him where I would stick him at.. Look at his face..poor kid looks a tad

I think this was where Philip said he was going to call

This is me telling him to not call Nah..this is me telling him just how much
I love him...
I think this could be him telling Jim that I need xanax..and he may be right...

Friday, May 15, 2009

Few Pictures Before His Operation..

Thought I would share some surgery pictures and tid bits and then later today I will share a medical update. Deal? This is the morning of surgery..we look scary..huh?

I just noticed Jim has his RHCP shirt on...Gotta love a 44 year old man who still wears a band shirt..hummm

Yep I bribed him for a pre off to surgery kiss. I just adore this kid....and miss him being happy and stronger...I am so looking forward to the day he is feeling better. Emotionally, Physically and spiritually.

I know it looks like I am trying to strangle him..but I was really playing with him....

See that smile.even drug induced it makes me happy to see

I think this was after his pre meds...Ya think?
In truth while I love to see this picture and his sweet laughing smile. It does make me sad..he is hurting and scared .
I so look forward to looking back at this one day and seeing how far we have come.
But there is a little part of me that is not sure when that is going to be..
I pray soon...
Thank you for letting me share some of the pre operation pictures...I wanted you to see that while we are struggling..we still try to put a smile on our face and move forward.

Wednesday, May 6, 2009

Long Day..Short Update

I have a lot of things I want to update concerning Philip's appt yesterday and today. I am sure you will all understand if I wait till tomorrow to post the update.

I am not feeling too good tonight. I just have not rebounded this week from last weeks treatment. I have felt exhausted and sick all week. I think everything is just catching up with me. Tomorrow is Thursday which is treatment day. So I am going to try to take some nausea meds tonight and get some rest.

In truth I also need time to adjust to some of the news . I feel like I am a tad "off". About the time I think I have come to terms with some of the decisions and issues..I let myself think too much about it..or I realise something I did not think about..and all of the sudden I feel far from a place I would call ..acceptance. Baby steps...I guess.

Today has been a day that has proven to me once again that I can not get through all this alone. I am going to cling to my faith and hold on tight. Because I do not want to feel bitter or angry or sad. I want to feel faith , love and some peace.
I wanted to share something so sweet with each of you. Many of you know that Philip ( aka Duppy to Cole ) and Cole are so very just makes me melt. Today I did not have anyone to watch Cole for a DR appt Philip had. So when he woke up I asked him if he wanted to go and take Philip to the DR. He said with a big smile. Yes I do. I will hold his hand and make sure he is okay. And let me share he stayed right by Philip's side. In fact when the DR came in to exam Philip..he said Cole..let me see Philip's hand for a second and then you can have it back. Melts my heart. Gosh I love their relationship. So sweet and so innocent.

I wanted to share a few cute pictures I snapped with my phone. How sweet that Cole loves Philip so much and wants to take such good care of him. I know this operation will be hard for Cole to understand. We have been talking about it some to prepare him...but Cole thinks his kisses will fix Philip. Oh how I wish that were true.