I have been up all night in pain. It seems that as I heal I keep taking steps backwards. But after speaking with my surgeon, this is what is to be expected and considered normal for this type of operation. Okay let me just vent for a minute. I am over it. I am ready to feel better so I can work on getting better. The surgeon has explained to me in detail more then once just how complicated the operation was. And trust me I believe her. In many areas my healing has gone well. My scar looks much better then I would of thought it would. It still has a long way to go but so far I am impressed. But there are other areas that are just causing me major pain and slow healing. I have some nerve damage that has caused me pretty severe pain lately. I have a deep painful burn that goes up the left side of my face up to my eye and travels down to my upper chest area. The part that gets me most is...when it burns on my neck and face I always seem to reach to touch it..pat it to stop burning..it is just a habit that I NEED to stop. My face and chin have this awful numb marshmallow feeling that makes me sick EACH time I do it. Ya know when your dentist gives you the numbing shot? And as it is wearing off you have that gross feeling..that is what I have along with the burning every day now. Every time I touch it I get sick to my stomach. You would think I would learn...
The DR explained to me the nerve pattern and where my damage is. Our hope is that this is a temporary issue . Time will tell.
Along with this I am anxious for my incision to heal and stop hurting. The Dr was right...it is going to be a long recovery. But I will recover. I will....I will....I will...I keep saying that many times a day. And so many of you remind me of that in my blog on my harder days.
I am still waiting for the PET report. The holidays have really played havoc on all my medical test reports. I can assure you...Christmas and New Year holidays win over any test reports...just ask my Doctors. Hummm...lol
So without having the final report back from the PET scan I can only base my information on the neck path and blood work etc,
The form of cells that showed up in my pathology is treatable...very treatable. Thank God.
We are not out of the woods until the PET scan gets back but based upon the path report ..things are better then they could of been. With this being said I was reminded many times that this is a LONG recovery. But I like the fact that I am and will recover. While this is a hard issue to deal with...It is good news.
Now with respect to the breast lump. PET Scans are not good to help with the breast. I will be having a left breast MRI sometime next week. I also have about 2 weeks left for the BRAC test results. The Dr has made it clear that if that comes back abnormal we will do drastic surgery. Prayers for that test to be clear is so important. And of course if the MRI of the breast is bad we will follow up with whatever the DR decides.
We are still waiting on the PET to know more about the nodules of the chest and also to see if there is anything else going on in the neck or anywhere else.
We are still waiting to know what autoimmune disease I have that is wracking havoc on my body. As soon as the test results are all back we will know what it is and how to deal with it. The oncologist seems as if not more concern with this as she does the Cancer issues. I have full faith she will get to the bottom of what I have, how to treat it, and help me deal with it. What more can I ask for?
I think the biggest issue we have right now is a infection...a stubborn infection that is a worry to each Dr I am seeing. After four very strong antibiotics, by mouth and intramuscular. The infection is still here and keeps showing it ugly side.
Many of you may remember a few weeks ago I had a set back that lead to THIS. The infection seemed to clear up and then went crazy leading to this...
Notice anything odd? My face is having to be covered in the areas that the infection is flaring up.
Now here is some ...interesting or odd ..scary news. The same thing that grew from the culture of my face was in the tissue from my neck also.
The DR explained how the lymph nodes are a draining system for infection and ....well...it goes on and on.
But not only does it cause this on my face. It causes me to be sick. Fevers and chills . The sores are painful . And the cleaning and bandage changes are hard. Plus I have been having major stomach issues due to the strong antibiotics. To be blunt it kind of stinks. Okay there I said it. It stinks and I am over it.
But due to this we will be dealing with a infections disease Dr this week . The oncologist spoke with him and filled him in on everything. She said we had to get this taken care of now. So I am looking forward to them figuring everything out. About the time I think everything on my face is cleared up it goes crazy. Call me vein but I hate the bandages on my face. More to come on that topic on NOT ME MONDAY.
I know I gave alot of details in here...maybe too many. As over whelming as it sounds in print..it is just a course we are talking. And learning Patience. It ain't pretty but we will get the job done.
This too shall pass...Right?
So in summary...LOL ( that is what is on the bottom of my radioligy reports)
Waiting on PET results.
Will be having left breast MRI done
Waiting on BRAC test
Seeing ID DR for infection control
Cat scans every two weeks for follow up's
Plans to start the treatment of steroids to lower body fighting it's own cells are on hold until we get the infection cleared up because of the steroids lowering my body to fight the infection. Make sense? It did when the DR said it.
With all this being said..
I feel blessed that I am on my way to getting better. I have such faith that with time I will be feeling better and more in control of my path to getting well.
And while I wait for all that to happen..I am learning to be patient.
MY goals for this life lesson is learn harder on my new faith . Each of you who have sent cards and letter...visit my blog and leave the most inspiring comments..have shown me so much Grace. I FEEL the support and prayers. Some days that is the best medicine. Thank YOU ALL.