I know some of you had asked me about my treatments and my testing...so I thought I would post a little about what was going on..
A little about my medical issues....I am also careful with what and how I say things because I never want to say something in a way that if one of the children were to read it or hear about it..it could scare them...
As most of you know I found out I had cancer after having surgery on Dec 10th to remove three lymph nodes that had grown very large.
When they did the pre mapping MRI the scan found that I had some nodules in my chest wall that would also need to be followed. The radiologist said that these were found as a fluke because I was shorter and the scan piked them up. Due to having these nodules to has me as stage two. Plus since there was disease in more then one lymph node..it is classified as stage two . Once again very blessed.
I have had PET scans and Cat scans, MRI scans...One things that I did not understand was why I would need to do anything other then the PET scan. But it was explained to me that while the PET scan was a wonderful tool...for some places in the body a MRI or Cat scan was better. So I am feeling like we are covering everything. I am due for my next PET scan the sec week of March.
My Diagnosis is
Non Hodgkin's lymphomaStage II: Either of the following means that the disease is stage II:
- Lymphoma cells are found in two or more lymph node areas on the same side of the sheet of muscle (diaphragm) that separates the chest cavity from the abdominal cavity.
- Lymphoma cells are found in only one area or organ outside the lymph nodes and in the lymph nodes around it. Other lymph node areas on the same side of the diaphragm may also contain lymphoma cells.
Another issue is my Epstein Barr Virus levels are very high and have been for a while. So we are watching that. They are watching my spleen ..so far it has looked fine.
Each week I am doing my treatments. This consist of Chemo and steroids. After my PET scan if everything is stable I will continue my chemo but it will be be on a different schedule. We also may have to consider doing a open biopsy of the nodules on the chest...I sure hope not. I am not complaining but 3 major operations from Oct 31st is enough...I am ready to get this done and move on...But of course I will do whatever needs to be done to make sure we are on the right treatment path.
I am working on healing from my last operation. I had a little set back the last two days but am laying low and working on getting back on track. I know that this weekend I will have some down time with my treatment so that will help with my recovery....
As a family we are working on finding a balance of normal...we are making a new normal...