Philip had a bad night...He started the day off rough..he was not feeling well and stayed in bed until after 2:30 today. He decided to go to youth tonight with one of his friends. After being there only a few minutes he ended up calling and said he needed to be picked up right away he was feeling really bad. I hate those calls..they make me sad and scare me..He said his head felt like it was going to explode and he was in severe pain. This was after his extended release morphine pill and 10 mg perocett .
Sure enough he had a big seizure tonight. He has taken his seizure meds and is laying down.
I pray for a better day for him tomorrow.
We see the surgeon in less then 2 weeks for the consult on the brain surgery cath and also the pain pump. Big decisions and lot's of unknowns....
I do not mean to be a downer..but sometimes like tonight..I just can not help but think..how in the world did we get to all of this and how did things get so complicated.
One thing lead to another and another..and now it seems the worse seems to get worse. Please pray that this central nerve disorder is going to slow down. It just breaks my heart.