Cole Tre Update..

Do you know how much knowing you were all praying for Cole helped ?  These are not just words.  I FELT peace knowing he was covered in prayers and good thoughts. Thank you ALL for always being here for me and our family. We are truly blessed.

After a few days Cole perked up and made his way home. 

we are working with the Dr daily to come up with a preventive plan so we can try to control thsi should it happen again.

I just wanted you all to know I could feel all the support.  What a awesome feeling to know morning noon or night I could post and someone would be here and pray.  We are so very blessed.

Hard Day For My Sweet Boy

Cole has cried alot today.  Tonight has started off rough.  The nurse and the Respiratory tech are very concerned with some stats and sound he sounds very restricted in his lungs.  What concerns me is this is a ongoing change in the wrong direction from last night ...They said he is taking a turn in the wrong direction.  I KNOW this is just something we need to deal with and look towards a better day tomorrow..But I would be lying if I did not say I am a mixture of sad and frustrated tonight.

We spent some time today trying to make him smile  with my phone taking pictures.  We were going to send one to his brothers and sister to say hello.  This is about the best we got.  I think this says it all..

Tomorrow is his birthday..This makes me sad...

Pray tomorrow is much better for my sweet boy.

Last Night...

He must be getting better. True Cole form...Emily was being so sweet with cole..Cuddled with him...well she did not want to leave and I told her she had to go get ready for the new week..Cole whispered..Emily we are only fostering you...you have to go home..( we have fostered for the humane society and explained to him we can not keep them we are fostering them) Poor Emily is fostered..

Cole Says Goodnight

Cole says Goodnight and Thank you for everyone praying for him. His numbers are looking better. But he did have a scan that showed Pneumonia so they added a new IV antibiotic with his steroids and treatments. He missed his birthday party today ...so that means when he gets better we will be having a awesome party......I think he may even get some extra goodies. Thank you all who have lifted us up in prayers and offered such wonderful support.

This Morning

Thank yo all so much for the support after reading my update last night about Cole
I laid down last night and felt so blessed to know that there are sweet Mama's and a few dads who were thinking of Cole. 
Keep praying...His stats are some better.  His sats are low 90's BUT his heart rate is a little lower.  That is good.  They explained the fact he was working so hard to breathe and sucking in or grunting so much  causes it to rise .  But also some of the meds. So this morning it is nice to see the numbers lower.   Good Job Cole Tre.
This morning I was feeling anxious.  The blinds are closed tight so I peeked outside.  It was pouring rain. I swear I just felt calmer.  Crazy huh?  It looks all Grey out and it makes me feel better.  I feel calm. Maybe it just matches my heart a little.  Grey.
The thing that is so scary and confusing to me is we have NO idea Cole had asthma. He had the illness in January and it was a respiratory based illness but he had the fever and test results of being a virus.  Then three weeks ago he did get really sick but we thought it was a Going to school catch everything type thing.  What happened on Friday scares me in a lot of ways.  But what is scary is he was fine one minute.  Playing happy joking around.  And wham he was so sick.  I know we will learn what to watch for  but I swear I saw nothing. 
I know we will be very educated on Asthma.  I also know the Dr have spoke to us about prevented medications to help.  I know nothing about Asthma.  I guess to me it is odd..I can handle 19 brain operations with Philip, stroke recovery and shunts and pain pumps...But the idea of having Cole with such a quick onset of severe Asthma has me feeling overwhelmed.  I also think seeing him so sick struggling has made it clear it can be a serious issue.  I never new Asthma could get like that..
How did we not know he had it?  Everyone here says they can develop it and you not know until they have it..But he is 5 years old..
Maybe I will just concetrate on the 5 years we did not know he had it and put my effort into making sure he gets healthy now.
Do any of you have children with Asthma?  I would love to hear your thoughts ...
So today is Grey and glummy.  And that seems to make me happy. 
They are here from Respitory so I will go..
Keep praying ...tonight I will let you know how good today has been for Cole...

Shaken but so thankful. tonight

I am not sure where to be begin.  I am exhausted  so this will be quick.  Please keep my sweet Cole in your prayers.  He is very sick. To be honest I am not too sure how we got to this point but we have and we need prayers for a full recovery.
Back In January Cole got sick with a respiratory virus and was in the hospital for a week.  At the time we thought it was just a kid thing and felt very relived he got well and came home ...He jumped back into being our amazing little Cole.Three weeks ago Cole got sick.  He got really sick really fast.  It was his second week of Kindergarten . He missed a week of school.  We ended up with him getting steroids and a treatments around the clock.  He also went on IV meds. It was scary .  He got well and went back to school and all was great.
Yesterday  I picked him up from school.  Everything was fine and we had a nice afternoon. He went to my inlaws for a little while and when he came home he said he needed to lay down he was tired.  I thought wow this is really off for him but I will take advantage of some serious cuddle time. He feel to sleep and I noticed he was a little breathing sorta fast .  A few minutes later Jim came in and we were both really concerned that he was getting sick again.  Little did we know.  I decided to go ahead and take him to the ER so we could get him seen and well so we could enjoy the weekend.  
Emily decided to go with me.  So as we are driving there he starts acting off he was wheezing very loud and short of breathe.  I got sacred and did not know if I should pull over and call 911 or keep driving I was almost there.  I drove fast and ran the red lights ..
We got to the Er and they took him back and called the team to work on him.  After a few hrs in the ER  , test, chest XRAYS ( clear), No fever..teams of Dr working on him, they got him stable and sent us to the floor.  As we were going to the floor his stats dropped into the 80's and all heck broke loose.They ran us into the room.  They called staff from everywhere.  And they started hooking him up to things I have never seen.  They called our DR who was out of town and talked to the Dr covering. He showed up and a team of Dr worked on him.  He was sucking air and blue.  I was frozen with fear.  They started tearing off his clothes to get better lines.  They ended up doing a cut down to get a better vein for more lines.  Respiratory was here ...It was all so fast but so slow.  They ended up bringing in someone to do some arterial sticks for blood gases. That was when we knew how bad it was. They got him hooked up to BiPap Or was it Cpap.I am not sure now. But we moved to ICU . As we were moving out the room I saw the crash cart.  I will never forget the fear.  I kept telling them..I am so scared..we have to help him.  The whole staff was amazing.
Finally at 6 am I just laid down.  The nurses promised me they were watching the moniters and for me to rest. A few hours later my Dr walked in.  He came in to make sure we were okay.  He said the on call Dr called him at 3 am to talk with him.  When I saw my DR walked in..I felt so much better. Then the on call Dr came in.  Made me realize how blessed we are to have such a great team. They explained to me that what he has is...

acute respiratory failure.In this condition the bronchial tubes are completely blocked. The lungs in this condition are devoid of life sustaining oxygen and they also cannot get rid of the toxic carbon dioxide. It seems that he had a severe asthma attack.  The Dr have spoke to me about what we need to do to help this not happen again.  Cole has a long road to recovery.  But he is alive and we feel so blessed tonight. Shaky but blessed. This could of ended so different. I just can not shake this scared feeling I have. 
Please pray for Cole.  He is the sweetest little boy.  I just need him to be healthy and happy soon.





 

Day 8 - a photo that makes you angry/sad

Like I said it will take me a year to get through this 30 day blog challenge..

Day 8 - a photo that makes you angry/sad. I really have had a hard time with this.  I can not explain to you the mixture of feelings I have with this picture.  Such happiness and such sadness.  All mixed into one.  Is there a name for that?  Yep...grief. It is a harsh painful feeling.  Odd how in grief...death...you can not wish, beg, borrow or steal it away.  It is awful and hard and harsh. I would like to try to remember if I did not love Jackson so much it might now hurt so much.  And I would not give anything for loving my beautiful gift from God...Jackson. 
I swear I will be 90 one day rocking in a wheel chair missing my sweet beautiful nephew. 

Day 7 - a photo that makes you happy

Like a year later I am still working on my 30 day blog challenge. I ave to say I think I am failing.  But I am not giving up. So here we go.
Day 7 - a photo that makes you happy...
I LOVE this picture so much. I miss this more then I can even explain.  My sweet boys..What a blessing
Jumper 18 and Rasta 13

Day 6 - 20 of my favorite things

I am going to take 6 months to complete the 30 day blog journal. 


So today is 20 of my favorite things..
1. Victoria Secret Pink Bath Products. 
2. I love BAMA Football.
3. I LOVE LOVE LOVE 440z Sonics Diet cherry coke.  I only found out about them a few months ago and I am hooked.  
4. I love my greyhounds..On some of my hardest days Jumper and Rasta were here for me.  
5. I LOVE Tyler High Maintenance candle.  It is my all time favorite.
6. I have a perfume Sephora Pink Sugar Perfume I LOVE and only use once in a while so it will last longer.  It smells so so good. 
7. I love to get pedicures . It is a easy gift for family to give me . I love to go with a diet coke and sit there and just do nothing.
8. I have a new love of books on cd.  I borrow them from the library and once in a while rent one form cracker barrel. I listen to them while I am in my clinic appt or treatment days. It takes my mind off of things and makes the time go by faster.
9. I love the smell of Sephora Burberry perfume.  I sample it every time I see it. It smells amazing.  
10. Along side with my children my favorite thing is being  blessed to be Jackson's Aunt.It is so bitter sweet and I miss him so much every single day.
11. I love Troll beads.  I only get one when it is for a gift.  I LOVE to go and look.  I have  a mismatch bracelet of Troll and Pandora.
12. I love the smell of coconut. The smell of suntan lotion coconut.  Just calms me and makes me feel happy.  I use to have some amazing scents for the house and lotions and such  that reminded me of the beach with the smell.  I need to find some more. 
13. I love my heating pad.  On my worse days with my meds or treatment hangover my heating pad helps me.  
14.  I love my fan because I use my heating pad.  I am not sure I can sleep without a fan. 
15. I love the color chocolate brown and black.  I am not sure why because really they are depressing when compared to bright colors.  But I love them and always pick them in clothes and such.
16.  I love silver jewelry.  I am not a gold jewelry wearer.
17. I Love quotes.  I always seem to find one that says just what I am trying to say.  I may try to start keeping a book of them.  I always forget them after I see them .  
18. I love being a mom.  It means everything in the world o me.  I am not sure what I ever did to be trusted with my sweet children.  I cherish having them.
19. I love fostering animals.  We have been fostering for our local humane society and it is such a amazing feeling to know a animal is going to be put to sleep and we can take care of it and help find it a new home. Right now we have a mama cat and her 5 kittens.  They were minutes away from being put to sleep .  I happen to be there bringing back a mama cat we fostered that lost her kittens and was ready for adoption.  They asked and I said sure. Her kittens are now opening their eyes and doing great.  What a lesson for our children.  One person can make a difference.
20. I love gardenias and the smell of them.