Day 5 - your favorite quote

 30 day challenge ..Day 5 what is your favorite quote?
I LOVE this quote...

When the world says, "Give up,"
Hope whispers, "Try it one more time."
~Author Unknown

What is  your favorite quotes ?

I updated Philip's page ..

Friday, August 13, 2010 9:22 AM, EDT

I am sorry I did not come back and update.  To be honest we were so with the way the appt went.  I TRY very hard to be patient. I know we are not the only patient they have  BUT I think I came the closest I have come to exploding .  It was not pretty and I still find myself really upset about it.

We went to the Appt.  I had changed all my medical for that day.  And we took Cole with us .  We sat and waited for two hrs and 13 minutes.  ( yes I know the minutes..lol) they take us back and we sit even more. 

Philip is nervous and anxious.  Philip was really nervous and trying hard to be strong and hold onto the faith that this would work for him.  He so needed this appt to go well for him.

About 30 minutes later a lady from the office comes on and says "oh I am sorry" we did not get the authorization from the insurance company yet.  She said this is a very expensive consult and we can NOT see you until we get it.

I swear I saw stars.  I was shocked.  Not that the insurance did not send in their paperwork yet.  But they had us sit there for almost 3 hrs KNOWING we were checked in and done filling in our paperwork.  Why did they not come and tell us.  She said "it is a new staff and we are still learning".

I walked out and went to talk to the office staff.  As I was talking and they were acting like "oh well we are sorry" I said I have a feeling Dr...would not like how this was handled.  He walked out and said I am not and will deal with it.  He said that until they get the authorization we can not move forward.  It is a very expensive medication and procedure. 

I asked the staff to call the insurance company while I was there.  Of course you would of thought I asked him to give birth..( sorry ) He said he would call that day.  The Dr said call and get it done TODAY. Umm that was over a week ago.

So last night I check my voice mail and see that a company that handles compound and specialty medications has called .  Of course they were closed when I called back.  I wondered and worried what they wanted.  I called back this morning and spoke to a very nice lady.  She went over my benefits with the insurance company and also the coverage for the medication.  OUCH.

For one unit of the medication needed for Philip it is $1700.  He could need up to 7 vivals. 

I have had such mixed thoughts this morning.  I feel anxious and just blah.  I wish , want and need something to help Philip.  I read stories of people who have medical issues.  My heart hurts for them.  And my heart just ACHES for Philip.  I know I keep saying this ...but he is my son.

How did this happen?  I dare not ask WHY.  Just do not go there.  But when I have days like this I just think...how in the world did this happen.  I will work through my hurt and thoughts today and get back to the I can do it and we will do whatever ..I call that my RE-GROUPING .

Some of you have asked how to help.  I have been blessed with so many prayers and good thoughts for Philip.  And the prayers are the best medication for all of us.

I am going to try to work on helping fund this new medication and procedure.   Our percentage is pretty expensive.

I am going to have a online party for Philip.  I started a business a while ago and with my illness  I got lazy with promoting it.  This has kicked me in the butt.

Here is my webpage.  If you would like to help Philip and spoil yourself...make a small order.  I promise you..It is a amazing product.  Not your normal candle . Take a minute and look at the webpage.  If you know anyone who may be interested please share this with them.   Each order placed is a step in the right direction to help ...

https://dippin4divas.com/
or you can always email me
amyb1569@cfl.rr.com

I just know we have to do what so many of us do...pick ourselves up and move forward.  That is what parents of sick children do..whatever it takes.

Feel free to add this information with website where ever you think it will help. 

Also if anyone would like to host a online party..email me.  It is simple.  You host a party and earn free product.

I hope everyone has a blessed day.
Amy

Day 4 - your favorite book

So today is day 4 of the 30 day blog challenge.
Today is day 4..my favorite book.

I have not always enjoyed books the way I do now.  Since my diagnosis I spend a lot of time at DR appt and treatment.I now check out books on CD and listen to them while there.  The nice thing is ...it keeps me company. Anything to make the time go by faster.  There is a book that says was wonderful to listen to.  The fact that the author read the book himself moved me so much. And his message was amazing. If you have not read his book I highly recommended it. 

Then there are some easy listen to books that I loved.  Talk about making the time go by faster. LOL. Oh and if anyone asked they were Emily's.  I mean I think I "needed" to read them so I could make sure they were "ok" for her...right?


So what is your favorite books?



 

Day 3 - your favorite television program

This 30 day Blog challenge is harder for me then I ever thought.  I guess this means I am IFFY or Fickle. I can not pick one..Can you? 
 
I LOVE Prison Break.  It is the plot.  Not the cute brothers. Whoever wrote the plot was amazing.   LOL

I also LOVE Lost.  I have to admit I do not understand it sometimes.I blame it on my chemo brain.  In fact I think someone was on crack when they  wrote the storyline.  But I really Love it .  As soon as the last season comes out of DVD I will crawl up in bed and enjoy my LOST.

Last but but least.  I am hooked on GLEE.  I missed it on TV and had to rent the DVD's. I really wish they would hurry up and release the whole season for ME.
 
Oh and where were the cute as heck teachers like Mr. Schuester?  I would of joined the GLEE club..ha

Day 2 - your favorite movie

This may surprise some of you.  The truth is it surprises me.  There are tons of movies I really like.  Sixteen candles, Pretty in Pink, Forest Gump..the list goes on and on.
But one movie that stands out if " There is something about Mary".  One day when Philip was extremely sick.  I just had cried all day.  I had been at the hospital non stop and really felt pushed to my limit.  I came home and laid down.  For some reason "There is something about Mary " was on TV and I was too tired to get up and turn it.  I started watching it and laughed till I cried.  Happy tears.  Jimmy came in to make sure I was okay ...I think that stupid movie was the best medicine for me ..No drama ...just good stupid funny.
What is your favorite movie and why?

Tomorrow

Tomorrow is a BIG day for Philip.  He has a appt in the morning about getting ready for a BIG procedure.   I so want this to work for him.  And he NEEDS it to work.  So often it seems we spend so much time figuring out what , how, when to try something new.  Then we spend time praying and preparing our hearts for the procedures.  Then it does not work.  And most times it has made things worse.  But what worries me most of my son's heart. He needs something to work physically and maybe even more important mentally. 

I guess I am scared .  Scared in many ways.  I keep praying.  I want to turn it over to God.  I really do.  I am trying.  I think he understands my controlling ways.  Hey..maybe that is why he keeps testing me..LOL

Please keep Philip in your prayers and good thoughts tomorrow.  I just know with all my heart that there is a answer out there.  I just am frustrated with myself as a mom that I can not FIX this for him.
I love him, he is my son. 

Day one

I posted a few days ago about starting a 30 day blog challenge.  I am late starting , what is new, huh?  LOL

Day one..My favorite song.

Day one and it is already hard for me. There are so many songs I like but a few really talk to my heart.

I love a song that Bette Midler sings ...In my Life. It is a Beatles song but I really love her version. 

I LOVE some Red Hot Chili Peppers music.  I have seen them in concert a few times and loved every minute of it.  Their By The Way album has some great songs on it.

I guess if I HAD to pick one song it would be I can only imagine ...by Mercy Me. This song has ministered to me on some of my hardest days.  I LOVE the words and the imagine in my mind when I hear the song. The truth is...for me Heaven is the place I want to be.  For a long time now I have been scared of dying.    I am not sure why but it has always been something that has really scared me. Having cancer has made me think  more about Heaven. But Since my beautiful nephew passed away I think about heaven a lot more.  I hope it is as beautiful and special as I think it is.  I like to think the angels are singing to Jackson every night.

I know I could of answered this question in one sentence..I guess I got carried away.

Maybe some of you will share your favorite song with me.

Wordless Wednesday..

Our Little Foster Puppy...Can you guess what breed she is?

Better Late Then Never..

I am going to jump into a 30 day blog journal.  I hope I can stick to this and not bore everyone ...lol

I will start tomorrow after my wordless Wednesday.  Anyone else doing this already?

Day 1 - your favorite song


Day 2 - your favorite movie

Day 3 - your favorite television program

Day 4 - your favorite book

Day 5 - your favorite quote

Day 6 - 20 of my favorite things

Day 7 - a photo that makes you happy

Day 8 - a photo that makes you angry/sad

Day 9 - a photo you took

Day 10 - a photo taken over 10 years ago of you

Day 11 - a photo of you recently

Day 12 - something you are OCD about

Day 13 - a fictional book

Day 14 - a non-fictional book

Day 15 - your dream house

Day 16 - a song that makes you cry (or nearly)

Day 17 - an art piece (drawing, sculpture, painting, etc)

Day 18 - my wedding/future wedding/past wedding

Day 19 - a talent of yours

Day 20 - a hobby of yours

Day 21 - a recipe

Day 22 - a website

Day 23 - a youtube video

Day 24 - where I live

Day 25 - your day, in great detail

Day 26 - your week, in great detail

Day 27 - my worst habit

Day 28 - whats in my handbag/purse

Day 29 - hopes,dreams and plans for the next 365 days

Day 30 - a dream for the future


I'll start tomorrow since after all, it is Wordless Wednesday!