Where In The World Is Cole Tre????

Cole says Thank you all who prayed for me...My mommy told me who came by and left blog messages..

Cole decided if they can not find him..they can not touch him..

Cole wanted me to tell you he is home...and he is resting. He has to go over to the out of town children hospital for some sugar testing follow up. But for this morning he is home and happy..( okay not so happy but home..LOL)

Snack Time...

I know he is mine..but he is so darn cute...yes?

Snack Time ...

Check back later for some GREAT NEWS FROM COLE...

Wordless Wednesday

Notice anything "special" about this picture? The Dr and Nurses get a laugh each time they come in the room and see his cute toes.

It gave me a little shock when I saw them in the ER...

I guess Emily played some secret dress up..hummm

Someone Seems To Like His Nurses..

Cole seems to like getting his back beat on by his favorite Respiratory tech. He also loves to have his tummy rubbed by his day nurse. And then there is the one who rubs head during his treatment..I would say he is all boy...huh?

He is so darn sweet ...and we are so very blessed with all his care.

My sweet boy is working hard to get better.

Thank you all so much for the prayers. The comments and emails mean so much...you bless our family with your support.

Thoughts from Cole

Mommy...why does everyone dress like a space person?

They like to dress up here Cole..funny looking huh?

what I thought is..
there are two lil notes on your door that would scare anyone too death to come in here without being covered ..head to toe...

Cole...Oh..I must be dressed up as ET..

Gosh I love my sweet boy..

Cole Update...Sunday..

I love this picture. One of the techs came in today to check on Cole. He told me he went home and had been really worried about Cole. He asked me if it would offend me if he prayed over Cole. Offend me...never. What a blessing that Cole has such amazing people taking care of him...that they work as hard as they can to help him get stronger and also pray for him and with him. God is Good.

Cole's blood sugars remain elevated. This is a concern to the specialist. He did order some pancreas testing and a antibody test. These will take a few days to come back. Maybe they will give us a more clear answer. Until then he is being treated with insulin and also having gis sugars tested every 3 hrs.

The Dr did add a new medication today. He also said he has some concerns with the deep breathing Cole and the sounds of his left lung. He has respiratory coming in every 2 hrs and now they added a vest that shakes him to break the fluid up better.

Cole did mouth the words to me early this morning that he needed to go home. That was enough to break my heart...I assured him soon we would be home ...

He is so sweet and so brave. I am so thankful we have such wonderful people taking care of him.

Thank you all for the great messages of support. It means more to me then you know.

Our Little Guy Is Sick

Cole has been sick all week. After two days of seeing the Dr and tons of meds and breathing treatments....he took a bad turn for the worse.
Thursday he started throwing up along with a 104 temp and coughing non stop. Jim and I decided to take him to the ER.
We were taken straight back and had a wonderful Dr and nurse.
As the hours went on with us in the ER his temp got to 105.3 and he got even sicker. They decided to admit him and run a ton of test.
We went upstairs at 5:38 am...I can honestly say I think I have never been so tired.
Cole is still in the hospital. As the nurse said he is the sickest child on the floor right now. That makes me so sad and worried about him.
His test came back showing he has RSV and Mycoplasma pneumonia.
He is on a IV, oxygen and a special antibiotic . Respiratory works with him every 3 hours. They also have added insulin due to his blood sugars being very off. When they tested his chemistry in the ER his blood sugars were 323. Which is extremely high. He is now being tested every 4 hrs and they continue to be elevated. They have sent in a specialist to talk with me about his numbers and a follow up plan.
Cole's temp is now staying around 103 and he is sleeping around the clock.
He is in double isolation . I am glad he is sleeping so much..I think he would be scared too death if he saw how everyone has to dress to come in the room.
I can honestly say...I feel so blessed to know that he is getting wonderful care. The nurses have been so kind and caring. And the two new specialist seem to really be on top of the new issues with Cole.
I am so very thankful that we came in and did not wait till the morning to have him seen again. That could of been a very dangerous outcome for Cole. We had no idea his blood sugars were so off. And if it had not been for a very aggressive ER Dr we may not of found out .
As each Dr has told us..each of theses can be hard to get over..and then you have him having both and high blood sugars...he is very sick and will have a hard few days ahead of him.
He is so sweet and so brave. I am just looking forward to seeing him smile again and get back home.

Checking in ..

I want to thank all of you who have emailed me and asked me if we are doing okay. It means so much to me that each of you took the time to not only think about us but to reach out and ask...

I have to admit I am in a way....a funk....a sorta hard place....

Why?

I am not so sure how to explain it. Lately I have just felt a lot of dread, I worry non stop. So I pray hard...real hard ...real often for a more peaceful heart. I seem to worry about everything and anything...and of it were not for a ton of DR appts this week..I would crawl up in my bed and not ever get out. Of course that could be a problem with the family..so maybe being forced to get up and go through the act of a day are a blessing...yes?

My medical test are being done...this week is a very busy hard week with some of them. So if you have a few extra prayers I could use them.

Today is a harder day for Philip. He has been up for hours and has a important appt today and procedure. Please keep him in your prayers today...the procedure is painful and scary for him.

I just pray and pray that there is some clear path to know what and where we need to go next. For a while it seemed like we were at a stand still and now it seems like we keep taking steps backwards.
Not giving up...and not giving in...just want to make sure we are doing everything we can to make a difference for Philip's medical issues and help him live the best life he can. Sounds sorta simple when I put it like that.

So once again thank you so much for the emails. I have been getting some for a few days now and each time they come through my email box..I am reminded that we are never alone..and there are so many who do care enough to stop and think about us...and ask how we are doing. That is a amazing gift to us.

I guess I need to get ready for Philip's check in today for his procedure..

Stop by and let me know how you are..what you have been doing...or just that you were here. I love all your comments and yes that means the lurkers..also.. LOL

Wordless Wednesday

Oh I can not tell you the major fit the boys had when they came in and saw Cole dressed like this and all made up ..with his sister teaching him cheers.

What I find so funny is..in the sec picture he is looking at his Spider man tattoos on his arms.

oh and if you look close at the first pic..peeking out of the top is a bra..but please do not tell that to the boys..They can not take anymore..

Somehing very special...

If you do not know Tabitha..you are missing out on one of the most amazing ladies I have ever had the honor of knowing. Tabitha does not talk very often about the things she has overcome...but let me tell you...she makes me strive to be a better person. Please take a minute to read about her on her blog.

Many of you know my beautiful nephew Jackson passed away very unexpected a few months ago at the age of 4 months . He had been a healthy big happy little boy who had a runny nose one day and was gone the next. He will always be our angel...

A month ago I got a email from Tabitha asking me if it would be okay for her group to honor Jackson when they did their annual drive for the children in the hospital at Valentine day.

I just could not believe it. How could one little boy of touched so many lives in his short time here? And here was the chance to keep his memory alive to 600 children that are fighting for their life. I can not help but think Jackson would love this.

Our family would like to thank Tabitha for allowing our family to be apart of this wonderful act of kindness.

Tabitha has some current raffles going on to help cover the cost of the gifts to the children. A simple donation of $5 gives you a chance to win some gifts cards and a few other great prizes from Live life
solid.

If you would like to help some sweet children fighting hard...take a minute to go visit Tabitha...you will be blessed. Tell her Amy sent you..

Here is the letter she sent ...
One of our favorite times of the year is near and we are excited about what's to come! Valentine's Day is all about LOVE. Love of family, friends, strangers and love of self. We love spreading love throughout the year, but we especially love doing it for Valentine's! This year Valentine's Day will be extra special for us, because we are honoring a very special child.

Although we have never met Jackson we were very affected by his passing. I adore his aunt Amy who’s a very dear friend. The days after Jackson’s passing Amy’s love and grief engulfed me. I went to my family and told them that I wished to honor Jackson. We decided that when our goody bags are donated this Valentine’s Day each bag would be given in honor of Jackson. We are including cards within each bag to state just that.

This year four hospitals will be gifted with gift bags for their patients:

Methodist Hospital in San Antonio, Texas will receive 200 goody bags.

Children’s Hospital in New Orleans, La will receive 200 goody bags.

Shriners Hospital For Children in Shreveport, La will receive 45 goody bags. (They only have 45 beds)

Shriners Hospital For Children in Philadelphia will receive 75 goody bags. (They only have 75 beds)

Through the past two years we have built beautiful relationships with 130 beautiful kids who we send uplifting mail & small goodies to twice a month. These children will also receive a Valentine’s Day gift bag in honor of Jackson as well.

Great Deal for both of us..

I know many of you know I am trying to earn extra money for medical expenses with Skinny Dip .
I have the following candles that I am selling this week buy 3 get one free...They will then go back to full price. This is a awesome deal...and by buying them at this price you are getting a deal and I am helping with some medical bills.

I also have pamper packs...you tell me what scents and I can ship them asap.

Feel free to email me..
amyb1569@cfl.rr.com



Lavender..1

Redwood cedar...2

Feeling flirty ....7

ambrosia 2

cucumber melon 4

mango papaya 2

so sexy for him 3

cranberry citrus 3

redwood cedar 2

frankincense and myrrh 1

blackberry vanilla 1

spring lilac 1

pink sugar 1