Just curious how everyone is doing this blessed Sunday?
Did anyone do any wonderful this weekend?
Got anything planned for this week?
I will be doing a treatment late this week and they tell me it will be hard on me. Since this is the first one of the new aggressive protocol I am not sure what to expect . Time will tell..huh?
Last week was a very hard week for Philip...He will be having some test done this week and a procedure. If you could keep him in your prayers . His shunt and pump will need to be turned off for these testing..with the shunt being off it means the fluid builds really fast and he will have a few rougher days even after his shunt is reset. I always dread when it is test time and the machines in him need to be messed with. But then again we need to know so we can get him some help. So Tuesday will be a hard day and we would so love to feel your prayers that day.
I also wanted to mention that Philip's birthday is in a few weeks...I have a feeling it will be a hard one for him for a number of reasons. I am trying to think of some ideas to remind him just how special he is . What a blessing from God the day he was born. I get goose bumps when I think of just how wonderful it was to finally be a mommy..and God sure did bless us with the most amazing baby and young man.
I am going to log off..we are having awful weather ...the lights have gone out three times..and gosh forbid my computer gets fried...always protect the computer..huh?
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4 comments:
I will definitely keep him in my prayers and you too!
What's on his birthday list?
Praying for your wonderful young man, Philip 365/24/7. I hope you all feel my prayers always, but especially Tuesday. Will spend every waking moment talking with God. Praying for his testing, the days afterwards because of fluid buildup. As always, I will pray for clear answers too.
Always have you in my prayers too dear friend. I pray that this 1st treatment with new protocol is not as harsh as your medical team has indicated. I am always here… if you or the family needs extra support. Please remember that my friend.
You asked about our day? Well, my past several days I have been an emotional mess… but still a blessed mess… ya know? I get to go to work this week… the dang kids have off for Spring Break… dang it. Staying up late, sleeping in… dang them.
Our weather up this way hasn’t been so bad… but my gosh, yes… protect the computer. :) Hugs, prayers and believing in miracles… always.
We did our March for Babies this weekend. That's always a special time for us.
Other than that...just trying to get through this week.
You will all be in my prayers!
xoxo
Here I am reading your posts backwards again..lol..I wanted to say I will be praying that your new treatment goes well later in the week and is not too hard on you..Praying that Philip's tests and procedure go well and hoping he can get some relief..I know that would make you feel much better too. Take care friend
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