
Wednesday, September 30, 2009
We have a winner
You will be blessed with her strength..
Kat...email me your mailing info..
amyb1569@cfl.rr.com
Tuesday, September 29, 2009
Let me explain..
The angel is the willow called Patience and her head is off. Which is a sign of where I am some days. I have no patience and my head is going to blow up..LOL
See what I mean? LOL.
Wednesday, September 23, 2009
Wordless Wednesday..Almost

Tuesday, September 22, 2009
Tuesday Thoughts...Raw
First of all as I sat watching Emily cheer tonight.. ..I got this thought in my head. I wondered what is going on in my body and if I was dying. And I guess deep down it has been a nagging thought or worry. But it came rushing out tonight...
I have been leaning on my faith non stop these past few days. I have to admit that while that is reassuring for me it also is confusing in some ways. Let me see if I can explain...
I am trying real hard to follow the path God is laying out for Philip. I have been praying non stop for a clear path and his direction. And yet it is not so clear. For example..I wonder if he has laid a path and I am fighting it without knowing I am.
Let me try to explain. I HATE pain medicine. I HATE the fact that my sweet innocent son spent months and months so drugged up that he could not function. In fact I blogged here not so long ago that I was scared Philip would not be able to stay in the program he was in due to the fact I had not followed the treatment plan that was set up for Philip. I had backed off on his pain meds and asked for a different path. I would go back and find the blog post but I am just too darn tired to do it. I had prayed that he would be a candidate for a nerve stimulator..and in the end he was not. his nerves are dead or damaged and they would not react how they need to ..for that type of machine.
So we moved on to the pain pump. He has the meds run directly into his spine and brain. And that did help with some of his issues., at least for a while. then it needed to be raised by 10%, then 15% and now 50%. We then needed to add more meds by mouth...one pill then three, then six and then eight. This caused a problem with the liver and kidneys..so we added it to the pump.
He now is still having to take meds by mouth. He has a complex medical condition ..and we seem to keep taking steps backwards.
It seems the more I fight him being doped up on meds..and fighting for him to live his life..as much as he can..The further we get from that.
Philip is such a wonderful young man. He did wonderful in school even with all the brain operations. And yet he now has that taken from him. His mind is so smart and sharp...and yet his body is such a mess.
Is God telling me to just let him take the meds and forget trying to have him have any chance at a life that involves anything but being drugged up. Where is the balance. I mean he is on the morphine and the new meds..where do you draw the line...heck is there even enough meds to ever make him pain free..without killing him...seems not.
Am I missing a message form God because I have my own wants and needs of how I want things for Philip to be? How do you know when you are really hearing God's message vs what you think you want to hear? I am never going to give up...and yet I am beating my head against a hard brick wall.
I am having a very hard time watching my son hurt all the time. And yet he tries to live as normal of life as possible for him. Why is it so hard. No I am not questioning God..I am just screaming to the top of my lungs..what in the world am I suppose to do? I am praying..I am trying to listen..and I am trying to hold on to my faith. But it is getting harder by the days.
Tonight at cheer leading ..a mom I knew years ago ..and I talked. She said..I am just shocked at how long this has been going on...so am I. It was really nice to talk to her..Philip and her son were friends years ago ...and they moved to another school. Emily now cheers with their daughter.
As she talks about her son at college and working..my heart can not help but wonder..what if. No I am not dwelling on it. But it stings..bad.
Some days I get this OMG feeling when I realize...this is my son. My little baby that I swore I would take care of..and I am not sure what the hell I am doing...from one minute to the next. How in the world did this get so complicated? I am so very thankful..and yet I am hurt and scared for my son.
I pray I wake up and feel some peace about things. Cause I am feeling down right defeated tonight...and I rarely let myself feel this way.
I know there are no real answers to any of this..I just needed to get this off my heart tonight.
Bring the Rain by Mercy Me
I can count a million times People asking me how I can praise you With all that I've gone through.The question just amazes me Can circumstances possibly Change who I forever am in You
.Maybe since my life was changed Long before these rainy days It's never really ever crossed my mind.To turn my back on you, oh Lord My only shelter from the storm But instead, I draw closer through these times.
So I pray.
..Bring my joy, bring me peace Bring the chance to be free Bring me anything that brings You glory.And I know there'll be days When this life brings me pain.But if that's what it takes to praise You Jesus, BRING THE RAIN.
I am Yours regardless of The dark clouds that may loom above Because You are much greater than my pain.You who made a way for me By suffering Your destiny So tell me, what's a little rain?
So I pray...
Tuesday..Philip
Today on twitter ..A sweet friend tweeted something that said everything I have been feeling and not able to put into words.
"We're not necessarily doubting that God will do the best for us; we're wondering how painful the best will turn out to be."C.S. Lewis
While those may just seem like words to some..to me that rip at my heart. I so want God and I to have the same plan. In fact I talk to him daily about just that. He is my son. My first born child. The sweet little boy who made me a mommy. I can not begin to explain just how much I love him . I am so very blessed to be his mother.
So I think for tonight I will just ask each of you for some prayers and good thoughts for Philip Tuesday. He is having a pretty serious and very important procedure done. This procedure is painful and has risk. BUt it has to be done.The simple fact is..Philip is running out of options and that scares me and makes me sad and extremely frustrated. As his mom I so WANT and NEED to help him...anyway I can. And in that department I feel like a complete failure some days.
A few things...
Last Philip medical update...
Looking for a awesome way to support Philip ? Please take a minute to read ..We need at least 36 to place a order...Would you consider helping? If you need more information or are interested in a order..contact me..amyb1569@cfl.rr.com
Sunday, September 20, 2009
What a honor..


Kristen ..pictured here with her adorable son Will invited me to be interviewed for her blog. I had to laugh at the questions..the more I answered the more I wondered if I might be a boring interview for all of you to read. LOL
Kristen has a shop where she makes the most beautiful jewelry..she also has a blog that I love to read. She also has a Greyhound that looks just like my Jumper Greyhound. So I happen to think Kristen is pretty darn cool and a sweet friend of mine. Go by and visit her and you will also.
Kristen surprised me months ago with a custom made beautiful necklace sent as a Spirit Jump gift. I wear the necklace to almost every appt I have and all my testing. It is one of my most cherished gifts. I can not tell you the joy that necklace has brought me on some very hard days.
I can even enter to win one of her beautiful necklaces. I have a beautiful one all picked out. All I have to do to qualify is for you to hop over to her blog and read my interview. Then leave a comment. Pretty simple..huh? Can you do that for me..I know you will love her blog . Also you can not hold me responsible for the new addiction you will have when you visit her Esty store.
Can each of you hop over to her blog and leave a comment about my interview. I so would love to be able to be entered in the giveaway for a necklace. Did I mention I have something pretty special in mind?
So please stop by her blog leave a comment about my interview..and maybe you could even tweet about it..
Wednesday, September 16, 2009
Special Giveaway...

Monday, September 14, 2009
Please Take A Minute To Read...

Not Me Monday

I did NOT have a cheer mom tell me she liked my new wig. I do not have a Wig..lol
I did NOT get all flustered and say Thank You..
I did NOT sneak into the pep rally at Emily's school to get a few pictures of her being introduced as a cheerleader.
I did NOT try to hide in the bleachers. I did NOT slide down when she saw me and gave me a really dirty look. Her eyes did NOT seem to shoot daggers at me. And I was NOT even a lil scared of my little tween at that moment.
I did NOT then tell her I was just trying to help get pics for the yearbook. LOL. I mean I will give them my pictures.
I did NOT just leave out the point that she told me not to come. I mean I know she really meant for me to come.Don't ya think?
I did NOT take pictures of two of the boys on the basketball team to show my sister because sweet lil Emily thinks they are kind of cute. And I really did NOT try to figure out which one was the one who gave her a high five and he has what she called WARM SOFT HANDS..
I did NOT try to talk myself out of doing this NOT MONDAY because I just do not have anything all that woo hoo to share
But today I am trying to break out of my funk and what better way then come here to share with all of you.
Sunday, September 13, 2009
CookBooks. Wii...Nike Ipod sports. Nitendo
amyb1569@cfl.rr.com
Mens/boys shorts..size 32/34..http://ourdailyblessinglife-amyb.blogspot.com/2009/09/mens-shorts-great-deal.html
NuWave Cooking oven...used twice..Brand new condition..$100.00
The Lady and Sons..Just Desserts..Paula Deen..Sealed$13.00
The Lady and Sons..Just Desserts..Paula Deen...Sealed$13.00
Paula Deen's Kitchen Classics ..New $17.00
Rachael Ray..365 No Repeats..New$13.00
Pillsbury...One Dish Meals Cookbook..New $13.00
Better Homes and Garden..Test Kitchen Favorites... New $13.00
All prices include shipping
Or $65 for all...
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Wii
Fishing Freenzy..$10.00 Fishing Rod controller that you use with game $7.00 Or $15.00 for both
puppy luv...$10.00
Thrillville...$10.00
Dragon Ballz..$10.00
Nerf game controllers...Tennis racket and bat..can be used with all games..$12 for both
3 wii steering wheel controllers. $10 each or all three for $25
$65 for all...Wii items
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Used Nintendo 64 in great condition with 2 controllers..$30
Pokemon Stadium N64 game $5
2 game boy to Nitendo 64 transfer packs..used for Pokemon stadium..$6
Everything $35
Gameboy Color and Pokemon Blue with case $15
OBO
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Ipod sports pack..Chip for shoe and sensor $20.00
Sport suit Relay wrist and armband for ipod nano OR ipod sports kit Nike plus $15.00
$30 for both
Evan Almighty DVD sealed..$7.00
Friday, September 11, 2009
Come on you know you wanna...
Thursday, September 10, 2009
Medical Update -Philip
For those who missed the post a few days ago..Philip Update
I am going to be blunt..some days I just hate to update my blog about Philip. It seems that I never come here with Good news. It seems like there is always some crisis ..
Yes I know this is my blog. Yes I blog for myself. But I also still hate to always come here with news like I have tonight...But I know so many of you care about what is happening with Philip. And I also know that you storm Heaven gates for Philip. And Philip needs them ..
With that said.Here is the update..
Things are awful with Philip. There is no easy way to put it. Philip is in a bad place. He is miserable everyday almost all day. He struggles with the simple act of trying to get dressed or take a shower. He is down and frustrated. And I think he is panicked at what the future holds for him. I know without one doubt as long as I have a breathe left in me..I will always take care of anything Philip needs from me. That is something I have always known and felt blessed to be able to have the chance to do for him. But I also find myself worried at what the future holds. I just do not know what is going to happen. And yes it does enter my mind too many days that I have cancer and so need to beat this to be here for a LONG time.
I have complete faith that God knows what the best plan is for Philip. I also know that he will never leave any of us. I just can not help but so so so want him to do what I want him to do. God and I have spoken about this daily. I am pretty sure God knows exactly what I want for Philip.
I am having to hold on to my faith for my soft place to land.
I just can not explain how heartbreaking it is to see my son struggle everyday , all day. I think this has been some of the hardest days this past week. I am just doing what I can do. Pray non stop with full assurance that my prayers are being heard.
For the medical update. We finally got a date for the next procedure. It will be in two weeks. It is something that we know we need to do but I hate that he is having to have it done.
The meds by mouth that have been doubled..are not working anymore. He is staying on them for now because we are wanting to see how his body reacts. He will behaving some testing done next week. The meds are very harsh on the liver and Kidneys. So we need to keep a close watch on his levels.
The insurance company has fought us every step of the way. They drive me crazy ..and I think they enjoy doing it. Ha.
I feel better just sharing all this with each of you. I just can not even begin to tell you how much it means to me to know you are all on Philip's team. Thank you so much.
Catching up...My medical
Sometimes I am not sure where to start or heck if I should even start. I struggle some days with wanting to have a happy carefree blog..but my daily life will not get the message..so until then..this is what we get..right?
My medical status is just stays steady. I will be getting a port..my veins are in rough shape and this is the best option. Considering I had the picc line in the past ..So after talking with a few of you who have had one..I know this is the best option for me. This is being done this week.
My meds over the next few weeks will be a lil harder. The nurse said that the side effects will be harder . I am looking forward to moving past this stage.
It is almost time for my next PET, MRI, Cat Scan and Mammogram..I have mixed feelings the days leading up to these. In the past they have brought hard news. Each test brought a new problem. But I also know these test hold the chance of hearing awesome news. So either way the tests are needed and will be done..Somehow my body forgot to ask me if I approved of how it is behaving.
I have been having a hard time with feeling worn out and tired. I know it is part of the process to getting well ..but it makes some days harder then any of us would like.
Some days I still wake up and hope this is a bad dream. Pinch me..please.
So enough of this..it brings me down to write it . We Can not have that can we?
To change the mood of this post..
I had someone tell me last week that they loved my wig...Umm..I do not have a wig..LOL
Wednesday, September 9, 2009
Wordless Wednesday...
Mens shorts/ great deal
New Giveaway...Come check it out..
Please notify me with your shipping info within 48 hrs..
I told you that this was the month for giveaways here. And today is another one..READY?
Kat has been so generous to offer a wonderful Giveaway for us..$45 credit to her store
Her Shop is filled with wonderful messages of hope.
I wanted to share how I found Kat. A few times a day on twitter she would post these awesome messages of hope and faith. Always a upbeat message and always a reminder for me to embrace each and everyday.
So of course I went to find out why, how and who she was...LOL. And I found her awesome store. Not only is her store filled with wonderful pieces. She donates pieces for Spirit Jump gifts.. And ya'll know how I feel about Spirit Jump.
I LOVE the peace aquamarine Bracelet..so so pretty..
To enter...
One entry.MUST go to her store and tell one thing you like OR something about Kat that you learned from her page.
One entry..Blog about this giveaway.
One entry..Tweet about this giveaway.
5 extra entries...buy something from her store and let me know ...
As a extra bonus Kat has 15% off discount when you use the code "AmyB"
Excited? I am...now go get started...
Nuwave for sale..Gargae sale..
amyb1569@cfl.rr.com
Monday, September 7, 2009
Garage Sale 2..Odds and Ends..Come take a look



These are the prices I would like. feel free to make a offer and yes if you are begging me to take even a higher price I will..lol
Alabama Sweat shirt Mens size M..this is big..brand new with tags$12
Sunday, September 6, 2009
Garage Sale.. The Firm..Wii Games. Nitendo 64...DVD and Videos
Ab Sculpt
Cardio Sculpt
Body Sculpt
All three $20
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Fireproof.. DVD..$10..Sealed
The second Chance..( came as a bonus DVD with Fireproof..so same type of DVD) $10 Sealed
Or Both for $15 plus media Shipping..
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Nintendo 64 Used..Works Great. Comes with 2 controllers and all wires to connect. $30
Extra ..add on for Nintendo 64
Pokemon stadium game $5.00
2 pokemon transfer packs..( connects the Game Boy game boy Pokemon to Nintendo 64) $7 for both
Or $35 for all of the above..Plus shipping.
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Blue game boy color..$8
Pokemon Blue Version $7
Or $12 for both plus shipping.
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Wii..Summer Sports..$15 Sealed
Wii Dragon Ball Z..Budka Tenkaichi( sp?) $15 Sealed
Or both for $25 plus Medica shipping
Cat In the Hat $7 Sealed
Peter Pan..plus bonus movie DVD $1o Sealed
Or both for $15 plus Media Shipping
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Videos for the VCR..
All for $10 plus Media shipping.
Discover Spot
Blue Clues.Blues Bday
Veggie Tales..Where is God when I am scared
Veggie Tales..Are you my neighbor
Veggie Tales..Madame Blueberry
Jungle Book
Bambi
Feel free to offer more..( LMBO) or make a offer..
Online Gargae Sell..INFO
Some of the items I am offering to you for just shipping..and if you would like to throw in a lil extra for the cost of the goodie..it will ALL go to Philip's procedure in two weeks.
Some of the items I would like to try to sell..and will give a base price I would like for the item...plus shipping.
This is not a perfect science..Just me trying to get rid of some clutter and make a lil extra for Philip medical fund...
So if you have any questions about a item I post..
amyb1569@cfl.rr.com
I will sell it to the highest price offered..That sounds awful doesn't it..LOL
Come on people help me clean out the clutter..It is leaving this house one way or another.
The Winner is....
Erin please contact me by Tuesday...I need your full mailing info and I will get your bag from Liz sent to you ASAP.
amyb1569@cfl.rr.com
Well everyone is a winner..because Liz is offering everyone a small gift...For everyone who orders a bag in the month of Sept and uses the code AmyB she will refund you 10% of the purchase price...So go over and order a bag..they make great Xmas gifts.
Thank you Liz...and Thank you everyone who enter..
Who is ready for the next Giveaway?
Saturday, September 5, 2009
Giveaway is closing
I will be posting a new giveaway this week..
I have some awesome things to offer you the month of Septemember..so check in often...
Friday, September 4, 2009
Cole Tre Update..



How in the world did I get so blessed with each and everyone of you. Thank you all so much for the wonderful support today in response to my Cole post.Thursday, September 3, 2009
Hurry...Tick Tock...Time is running out
Check back..I have another one that will be starting this weekend..
Cole...
I am worried. He has a temp of 104.3 and he is just pitiful sick. He is coughing so hard he seems like he is never going to stop. We spent last night sitting up all night with him trying to sleep on me. Poor boy.
He just feels awful . The more he cries the more he coughs and gets all gunky again.
I did call the Dr yesterday and we had a great conversation on what we needed to do to try to get him to turn the corner. The problem is..I have done all that and he has turned the " I am even sicker" corner.
The office opens in a few minutes and I will get be hitting redial until I get through. He is going to have to be seen first thing this morning...
I have treatment today..Yuck.. Crap..someone remind me this too shall pass..
And I know this goes without saying but please pray that Philip does not get this. It could be very dangerous for him. Okay and me too ..but moms are not suppose to say things like that..
One minute till I start calling..
Tuesday, September 1, 2009
Giveaway time..


















