Philip had a really right day yesterday. He woke up not feeling well...and things went downhill fast. I am waiting on our plan of action and will let you all know what the Dr are thinking. I so hope they are thinking...we have a miracle for Philip. Maybe one day..maybe
I would like to ask for prayers today. It is test time...I knew it was coming. Saw the Dr last week and we went over everything that was due. Yet when they started calling with dates and times and preps...I sorta freaked. Jim came home and I was sitting on the bed just crying..He said what is wrong..and I said it is test time and they keep calling. If I were him I would of said..Okay..and.... But he didn't he listened. He heard that I was scared and tired . I swear the minute they started calling..my stomach felt like I had swallowed battery acid. Okay I have never really swallowed it..but I bet if I did it would make my stomach feel like it has been. Make sense?
So today I start with the cat scan of the chest. If you recall they found nodules on the left ( 2) and on the right(1) by accident when they scanned the mass in my neck before My operation. So that was a tad of a shock..They have been stubborn each scan still being on the scan ..not shrinking or going away..but not growing either.
I have a little confession. I decided that I just did not think today as the right day. So I called first thing to cancel. They put me on hold for 36 minutes and I got another call..so when I clicked back..I was disconnected. So I stomped my feet and threw my arms up in the air and said ..whatever I will go. I will fast and I will be medicated and I will GO. So I am going.
I wanted to share with you a few things. As a mom who has watched her child fight every single day since he was 6 weeks old and had his first brain operation. You sometimes have to distance yourself from all the bad and awful things that do and can happen. It just hurts too bad sometimes. Yet a few weeks ago I reached out to a mom who's child was in the hospital . Her child had some issues similar to Philip's with damage to the brain stem and it could not be controlled. Evey day I would open my mail and take a deep breathe when I read the update. She passed away yesterday. As her mom said..she is now in the arms of Jesus. This mother showed so much grace and love sharing her sweet daughter with all of us. Please pray for them . Their hearts are broken but their faith is strong.
Thank each and every one of you for being here with us this past year. There are days where I feel like your support and prayers were the best medicine ...
We are so very blessed...By each of you.
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Praying that today goes well for you. And for Philip as well!
I hope your testing goes okay and you have encouraging results. I was wearing my shirt last night and thinking of you all. My heart just breaks for the mother that lost her daughter. So sad.
I'm praying for you today, Amy, and good, encouraging results! You KNOW that God is watching closely over you...always has and ALWAYS will!
Praying for you as you look ahead to these tests. Blessings on you for reaching out to that other Mom, which I know was a hard thing.
Amy.....I am praying fervently for you. I have been following your blog for about a year now and comment every once in while, but I want you to know that you are so often on my mind and in my prayers like you were a family member...guess in a way you are....a sister in Christ. You are a blessing in my life and an honor to pray for.
Dear Amy: Please forgive me for not corresponding as much as I should. I have demons that crop up with Jeff's passing. I do, however, read all of your posts.
I thought you'd find this Reminder from God interesting:
"Let your requests be known to Me. But do not beg. Rather come just as a business manager brings to the owner the needs, checks to be signed etc…, and knowing that to lay the matter before Me is immediate supply."
Gosh I find myself "begging" all the time. No wonder he's impatient with me.
As far as you not being able to get through on the phone to cancel your appointment - I truly think that was a sign that you must not cancel. I'm glad you are going ahead. I know it's hard when those tests roll around on the calendar - but please think positive and "let your requests be known" to God.
Sorry I am way behind here..but wanted you to know that I continue to keep you, Philip and your entire family in my prayers each day..hoping all the tests go well and for good results..God Bless!
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