I wanted to give you a quick update on Philip. He was up a lot last night but slept this morning. he got up about 3 and took some more meds and seems better for right now. I will be making sure we get in to see the DR tomorrow morning. WE have had too many days where it seems like everything is going better and then all heck breaks loose. A plan of action will be nice tomorrow.
I guess my issues still goes back to...sure today he seems in less pain and is up and functioning..but the amount of meds he is on along with his morphine pump is scary and shocking. Wish we could find and fix the issues vs taking more and more drugs. But for today I will be thankful that the meds have been controlling his issues better. Baby steps...
Also without going into personal details...I would like to ask you for prayers for Philip dealing with some issues that are ongoing and personal as a result of him having a stroke. These will be dealt with but it may not be easy pleasant for him or me. But ya'll know me..we will get it done.
Have I mentioned I so wish there was a book called How a Mommy is to know what to do for all of this..
Can any of you write one and send it to me?
Love you all and am more thankful for all your support then you know..Please stick around..I promise things will get better ..They will...right?
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5 comments:
Amy,
You are a very sensitve, loving and courageous person. We all have those moments when we think , ugh not a good mom moment or day, but we know that our kids love us unconditionally. Continue to seize those moments that take your breath away and know that Cole's innoncence and constant love will push you forward to kick this Cancer out of this galaxy for good. So many people are praying for you and your family daily. I teach 6th grade so if Emily ever needs advice or help don't hesitate to let me know. I work in a 6th through 8th middle school. I've taught for 15 years and have two boys 9 and almost 6. I help out several students each year whose parents are going through sickness, seperation , divorce and so much moe. She sounds like a trooper just like her mom. She would fit in with my twilight club at my school. I'm praying for you , fight because you know that you need to beat this and God will help you out.
Andrea
I am glad that at least for some time Philip has gotten a little relief...I totally understand that you wouldn't want him on these high doses!! Will definitely be praying for God to help Philip with his problem..Always so good to know exactly what to pray for!
I am thinking things will get better!!! Perseverance will get you through and you will be abundantly blessed!!
Good luck today with the doctor and hopefully they can come up with a plan for pain relief that will be constant....
Amy, as far as the book goes - I've often thought about that while I went through Jeff's disease. Your blog will definitely help you in that area. I just wish I had started my blog when Jeff first became ill.
It's amazing but I often go back and read and reread my entries and it automatically takes me back to that specific minute/hour/day in my memory.
You have all the material you need right in your blog.
When you are feeling on the top of your game - I will be first to volunteer to help you with that book. I can help you compose and you can edit for grammar. I hated English when I was in school....
Cheryl
You all are dealing with so much..and doing the best you can..here with support and encouragement, always. Keeping you and yours in thought and prayer every day. And it will get better, hold onto that strong faith, God will see you through.
i recently wrote a post and ended with the same thought: "things will get better...won't they?".
life has a way of testing individuals, you feel you can't deal with more and then 'more' is heaped upon you.
there are no words for the courageous struggle that you and your son share. nor do you need to offer words or give us reasons. you have the full right to your privacy even while asking for prayers - and that i can offer you...gladly.
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