I would love to give a good update but I do not have one. This are bad. In fact things are worse then I thought they would be. The weaning off this medication is awful for him. He is in a lot of pain, sick and having seizures and awful cluster headaches.
I do not have the words or energy to explain the defeat I am feeling right now with all of this. I am feeling the blunt of the issues with Philip. While I know in my heart he can not help it and is just sick...it is taking it toll on me. My patients is short and frustrated is high..but my faith is strong...I am just ....well I bet most of you know.
I pray that Philip has a better day. He is going through so much right now. My heart aches for him. I just so would love for him to just be happy, healthy and feel whole. Is that so much to ask for? I will not ask..I will pray for it. Maybe you will join me..
Few last details..
Some of you have asked about Philip's birthday. Yes it is this weekend. April 19th. And for those who asked..here is his contact info..
133 Terry Street
Indian Harbour Beach Fl
His operation is still planned in a few weeks..details here..
Please do not forget to check out Philip's online party..all proceeds go to Philip's medical fund..
Last ..if you would like to post about Philip's party on your blog...that would be great..or even put the button for it on your blog roll..I have the code..
Oh I lied...Last but most important...Thank you for being so wonderful to support our family with your prayers.