Tuesday, March 10, 2009

Quick Appt update

I am going to do a full update tomorrow morning. I can honestly say I am so worn out tonight I feel like I am drugged. I just feel exhausted. I am sure it is a mixture of my chemo hang over and the emotions of Philip's appt.
When we left Philip's appt today I had hrs of phone calls and medical issues I had to follow up with from Arnold Palmer due to needing some records and additional scans. In fact I spent 93 minutes on hold at Arnold Palmer..93 minutes..can you belive that. So it has been a really long hard day.
We did get some answers today and are working on some decissions. I will know more tomorrow morning. Alot of what was decided today was exciting and some was very scary. I will just say we are entering very new areas and it is exciting and very scary...at the same time.
So please forgive me for saving a full update with details until I have everything tomorrow. I just am feeling worn down physically and mentally tonight.
And I also want to give you all a clear picture when I hear back from all the different suregons and Arnold Palmer tomorrow.
I just wanted to come here tonight before I try to go to sleep and tell each of you THANK YOU all for caring about Philip and PRAYING for him. It means so much to me. I feel such peace knowing that when I am feeling weak you all help pick up the pieaces until I feel strong again. What a blessing you all are to our family.

12 comments:

Liz (Loving Mom 2 Boys) said...

I can't even imagine 93 minutes on hold!! That alone must have been so draining!! I hope everything goes smoothly for you tomorrow - you and your family are often in my thoughts.

bluesuede said...

Didn't I tell you that I'm always here for you. I got this update hot off the press. Try to get some rest, my sweet friend.

Shannon said...

Thanks for the update! Now get some shut-eye!

Michelle Riggs said...

I am so glad you have some of the answers you were searching for. Praying for rest for you and Philip tonight and for peace.

April said...

I can just imagine how wiped out you must feel...especially after sitting on the phone for 93 mins.! We'll be waiting anxiously to hear the news about Philip's appointment...whenever you're ready to share. Hope you're able to get some rest!

Alicia Hall said...

I found your blog through Abby Riggs' blog. My daughter also has pseudotumor, slit ventricle syndrome, and a catheter stuck in her brain stem. I have some info for you that might help about a different pressure surgery. I emailed you at the account listed on the caringbridge site. If nothing else, I wanted you to know...someone out in the big wide world totally "gets it".

I'll be pulling for all of you!

- Alicia - Avalon's mom

Charmaine said...

Been praying continually for you and Phillip. I pray that when all it comes together, there will be no doubt about the decision that you and Phillip must make. I pray that you will see God's hand in it very clearly and have peace in your heart that you are making the right decision...Take care and God Bless

Hope said...

93 minutes.....ugh.
I hope you got some rest. You and Phillip are in my thoughts today.

Juls said...

Wow, hang in there girl... 93 minutes on hold is ridiculous and EXHAUSTING in itself, I'm sure. I'll be checking back for your update..and praying.

OhYeahBabe said...

As rough as this is, it must be a relief to have a plan start to come together. The anticipation, anxiety and unknown is so hard - and reality is hard enough without that!

My prayers are with you guys. How's your husband doing?

MoziEsmé said...

Prayers said for Philip, and for you and your family...

Rachel said...

Praying for wisdom and for clear guidance from above. Asking for peace and protection and health for your family.

Bless you