Thursday, March 19, 2009

Philip ..CB update

Today has been another rough day for Philip. Weening off some of his meds is almost cruel it seems. He and I just spent some time talking about what night meds for him to take to try to give him some pain relief for tonight. I understand why he needs to ween off the meds but it is just hard on him and very painful. We are always watching close for seizures since some of his meds are related to that. We need to really NOT get those started where we can not control them

One more issue..Philip fell the other day and cut his foot . It is in a bad place and slow to heal. Please say a prayer that it can start to heal and we do not need to have anything done with it. Any type of infection is harder for Philip to fight right now.

We are doing the work up for Philip's first stage of his operation. There are two important things that HAVE to be done before we can get it done. He has to have medical clearance. Not the easiest thing but we will get it. And he has to have a psych consult due to hos extreme this operation is. I am working on getting that done also. Alot to get done..not a lot of time. But we will get it done. Whatever it takes.
This was posted on Philip's CB site last night and I know some of you do not read there. So many of you pray and carry Philip in your thoughts daily...I wanted to just share these quick thoughts from From Wed.

We are looking at the first stage of the operation in a matter of days..maybe..

Today was heartbreaking for me ..Philip never really complains about too much or talks about the 'what if's. But today he told me he was worried about his future. He talked , I listened and inside my heart broke. What do you do when you can not pick them up and rock them? So instead I said..well you know I will do whatever it takes to make sure you are okay and take care of you ALWAYS.
I wish I knew what that was. Until then I will pray and hold on to the faith that GOD has always held Philip in the palm of his hand and taken care of him.

We are so blessed.


Hope said...

That's a lot to deal with. You both are so strong and you're right, God will help him. I'm thinking of you both. I hate hearing he's in pain.

bluesuede said...

Amy, I left a comment at Caring Bridge, but I just wanted you to know that I am checking in and I have you on my mind.

April said...

I know that you are entering scary waters...but, God is ever near. I hate that Philip got a bad cut on his can guarantee that my prayers will be lifted up on his behalf!

I can only imagine the emotions you are experiencing right now. As I've said before, I will never pretend to fully understand, because I'm not walking in your shoes. However, do know that my heart if full of compassion for you and your family. I really care about what happens to each of you. My prayer today is that God will surround you with his lovingkindness and that He'll give you the strength to trust in the healing powers of His love. God Bless You, Amy...I'm in your corner!

Denise @ Sunflowers, Chocolate and Little Boys said...

At times like this all you can do is lean on God. He will be your Rock and give you strength. You and your family are in my prayers.

misty said...

I continue to pray for Philip, You and your family. You all are dealing with so much and I hope get some relief very soon. Keep holding onto your faith and each other. God will see you through.Please take care!

Kim said...

How do I get to the caring bridge site for Phillip?