Philip had a bad night...He started the day off rough..he was not feeling well and stayed in bed until after 2:30 today. He decided to go to youth tonight with one of his friends. After being there only a few minutes he ended up calling and said he needed to be picked up right away he was feeling really bad. I hate those calls..they make me sad and scare me..He said his head felt like it was going to explode and he was in severe pain. This was after his extended release morphine pill and 10 mg perocett .
Sure enough he had a big seizure tonight. He has taken his seizure meds and is laying down.
I pray for a better day for him tomorrow.
We see the surgeon in less then 2 weeks for the consult on the brain surgery cath and also the pain pump. Big decisions and lot's of unknowns....
I do not mean to be a downer..but sometimes like tonight..I just can not help but think..how in the world did we get to all of this and how did things get so complicated.
One thing lead to another and another..and now it seems the worse seems to get worse. Please pray that this central nerve disorder is going to slow down. It just breaks my heart.
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8 comments:
Prayers as always dear sweet friend. It breaks my heart to know he is having such a bad night. From our lips to God's ears...
How hard it must be to see your boy in pain like that!! I will be praying for your family!!!
Dear Amy..
My heart aches for you and Phillip..
I just wanted to let you know I pray for both of you daily and hope you will have the answers you need very soon.
Loads of Love and God Bless
xoxo
((((hugs))))
Maggie
Oh Amy I will continue to hold you Philip and your family in prayer!!!! I was just telling mom tonight while I was waiting for dads iv meds to finish what has been going on with you and your family. She too is going to keep you all in prayer!!! No family should have to go thru the trials and tribulations as you all have been going thru!!! Now tell Miss Emily to give up the PINK and let you relax a few!!!! Take care and remember I am here for you!!!!
Love, prayers and hugs,
Tracy
P.s. I am as close as the keyboard girl email addy is rytrav95@gmail.com or rytrav95@aol.com email me or im me anytime!!!!!!
im so sorry to hear about phillip and i can only imagine how hard it is to see a child in so much pain. my own youngest daughters brush with migraines was awful enough...healing prayers for phillip... xoxox... annie
Someone just e-mailed me this .... I thought you'd like to read it. I find at this difficult time in my life that prayer really calms me down and makes me more hopeful (whatever God decides to do).
READ THE FIRST LINE CAREFULLY. .
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
My prayers continue for you and your lovely family.
Amy, thoughts and prayers for you and Phillip and your family at all times! You guys certenly have had your share...time for it all to stop and for you guys to get some peace finally. Think of you often.
I'm with tracyB...tell that little one to give up the Pink!! Momma needs a bath!! lol
Best wishes always.
It's one thing to have to go through crap yourself but to watch you child (for 2 decades) go through all this has to be just awful. Every time you post about Philip I literally have to take a deep breath before I begin reading it. It's just heartbreaking to think of all the pain and struggles he goes through. He, too, is often in my prayers.
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