It is almost 10 PM Sat Night. We now have a CD MRI done. And the neurosurgeon has got his shunt to work again. It will need to be watched close. His shunt works so poorly for his slit ventricle syndrome that it is very dangerous for him to have it not work , even for a shirt time period.
So he just had some very strong pain medication and we are hopeful that he can get some rest tomorrow.
We have a very busy week next week. Monday starts with the nerve test on both arms, hands, back, neck and one leg. Then Tuesday we will try to get the muscle test done. Then we need the muscle biopsy done also. While it is busy it means we are moving toward some answers. We needs answers to make a plan.
Philip's pain is not managed at all right now. So we are counting the time till we get him in to see the pain doctor On Tuesday.
I could feel the prayers today for Philip. We are so blessed to have such a support team for Philip.